{"id":28032,"date":"2021-06-01T19:01:11","date_gmt":"2021-06-01T17:01:11","guid":{"rendered":"https:\/\/travesiapirenaica.com\/?p=28032"},"modified":"2021-06-01T19:34:17","modified_gmt":"2021-06-01T17:34:17","slug":"finisterett","status":"publish","type":"post","link":"https:\/\/travesiapirenaica.com\/en\/finisterett\/","title":{"rendered":"FinisteRett: a journey to the end of the world."},"content":{"rendered":"

Get your trekking boots and bicycle ready because this coming Monday, 7 June, we are going to the end of the world with the support of the foundation My Rett Princess<\/strong><\/a><\/a> y Ochotumbao<\/strong><\/a>.<\/p>\n\n\n\n

The FinisteRett Project<\/strong> is a sporting and solidarity trip in which the mothers and friends of the foundation My Rett Princess<\/strong> y Ochotumbao<\/strong>They will walk a distance of more than 200 kilometres of the French Way to finish in Finisterre, where they will join the team of parents and friends of the association, including Dani Rovira and Francisco Santiago, who will cycle from M\u00e9rida, along the Via de la Plata in nine stages.<\/p>\n\n\n\n

The aim of this project is none other than to give visibility to all those affected by Rett Syndrome and to raise funds for research.<\/p>\n\n\n\n

What is Rett Syndrome:<\/h3>\n\n\n\n

Rett syndrome is a severe neurological disease that affects mostly girls, approximately 1 in 10,000 live births. It is therefore considered a rare disease. In Spain there are an estimated 2,700 affected. They are girls who are born healthy, but between 12 and 18 months suffer a genetic mutation in the X chromosome that prevents them from having control of their body, with a severe autistic spectrum. They do not speak, many do not walk, have serious communication problems, suffer from epilepsy, scoliosis, digestive problems, sleep disorders and a long etc... The progressive progression of the disease makes them dependent, the cognitive and motor deterioration is such that they are considered multi-disabled.<\/p>\n\n\n\n

How I can help:<\/h3>\n\n\n\n

It's easy. Through the website of My Rett Princess<\/strong><\/a> and the foundation Ochotumbao<\/strong><\/a> you will find the way to do it. You can make a one-off donation, become a member, become a volunteer, or buy something from the charity shop. <\/p>\n\n\n\n

The film All Roads<\/strong><\/h3>\n\n\n\n

In fact, this is not the first time that Dani Rovira and Francisco Santiago \"Paco\" (father of Martina, a girl affected by Rett Syndrome) have joined forces to pedal to raise awareness of this disease.<\/p>\n\n\n\n

It all started 4 years ago, in 2017, with a call from Paco to Dani Rovira (whom he didn't know) and ended with a bicycle trip to Rome to take this cause to Pope Francis. A little madness that would end up becoming one of the most beautiful adventures of his life, according to Dani Rovira.<\/p>\n\n\n\n

The project grew to the point of turning this journey into a documentary film called Todos los Caminos (directed by Paola Garc\u00eda Costas).<\/p>\n\n\n\n

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